Cystic Fibrosis

The Cystic Fibrosis Center at Children’s Hospital of Illinois participates in Cystic Fibrosis Foundation (CFF) Patient Registry. The CFF Patient Registry tracks the health and treatments of over 27,000 people with cystic fibrosis across the United States. This registry helps cystic fibrosis centers improve care delivery, develop care guidelines, and design trials to test new therapies, as well as study the effects of therapy; the registry also helps compare overall health of patients between centers and find areas where care can be improved to improve the health of patients with cystic fibrosis.

The Cystic Fibrosis Center at the Children’s Hospital of Illinois continues to score above the national average in all age groups for lung function.